Hip and knee arthroplasty PROMs
Hip and knee arthroplasty PROMs kathschachHip and knee replacements improve mobility and quality of life for patients, particularly those who have spent years managing debilitating pain from osteoarthritis. These surgeries are among the top 3 most-performed inpatient surgeries in Canada. Hip and knee replacements were identified as initial areas of focus for PROMs because
- PROMs programs currently exist in these areas across Canada and internationally
- There is strong support from the clinical community
- Evidence supports expected improvements in pain, function and quality of life after surgery
- A high number of patients undergo these surgeries, resulting in substantial costs to health systems
National standards
AVÐÇÇò published the Patient-Reported Outcome Measures Data Collection Manual: Hip and Knee Arthroplasty in 2019 and updated it in 2021. This manual outlines national data collection guidelines and recommendations for PROMs instruments:
- EQ-5D-5L: A standardized instrument developed by the EuroQol Group that measures health-related quality of life
- Oxford Hip Score (OHS) and Oxford Knee Score (OKS): Validated measures developed by Oxford University Innovations to assess pain and functioning in patients undergoing hip or knee arthroplasty
- 2 survey collection time points: Pre-surgery and 1 year post-surgery
- Minimum data set: Additional information to collect with a PROMs tool
AVÐÇÇò’s Canadian Joint Replacement Registry (CJRR) Advisory Committee and PROMs Hip and Knee Replacements Working Group have endorsed these standards. AVÐÇÇò is facilitating the uptake of these national PROMs standards to enable pan-Canadian PROMs comparative reporting.
Adoption of national standards and data collection for hip and knee PROMs in Canada
Nova Scotia adopted the standards in 2019. Ontario adopted the standards in 2018 and provides data to AVÐÇÇò. Manitoba* and Alberta* adopted the standards in 2020 and 2023, respectively, and provide data to AVÐÇÇò. British Columbia adopted the standards in 2020.
Note
* Long-standing provincial programs.
Patient-Reported Outcome Measures Data Collection Manual: Hip and Knee Arthroplasty, 2021
Guidelines for survey time points, a minimum data set (MDS) and recommended PROMs instruments
About the data
For more information about the data, visit the PROMs metadata page. Researchers, decision-makers and health managers can request specific PROMs data through the Access Data Inquiry Form.
Visit AVÐÇÇò’s Make a data request page for more information.
Licensing
AVÐÇÇò has obtained licences to use the OHS, OKS and EQ-5D-5L, and we are permitted to sub-licence these instruments to Canadian hospitals and providers for use in routine care (i.e., not for research or commercial purposes). In addition to Canadian English and French versions, validated translations in other languages of the tools are also available. To register for these PROMs tools, email proms@cihi.ca.
Reporting
Understanding a patient’s self-reported outcomes is integral to improving patient-centred care. PROMs can be used with other health system performance indicators to drive improvements in Canada’s health care systems.
In collaboration with pan-Canadian and international partners, AVÐÇÇò provides comparable and actionable data and information that are used to accelerate improvements in health care, health system performance and population health. Learn more through the following reports:
CJRR annual report
Explore the latest information on hip and knee replacements in Canada, including patient demographics, surgical statistics, costs, patient-reported outcomes, data tables and revision risk curves.
Using patient-reported data to better assess quality of care for hip and knee replacements
This report demonstrates the feasibility and value of combining clinical outcomes, patient-reported experience measures (PREMs), PROMs and costing data.
OECD Health at a Glance
Key indicators of health system performance across OECD member and partner countries and reporting on PROMs data in acute care for hip and knee replacements
How would we know whether joint replacements are successful if we do not ask patients?
Explore how PROMs data can be used to help identify factors that lead to better care and what contributes to a patient’s perception of surgical success.